I have learned a near insurmountable amount of information these last months, and I am a mother of a child with a disability. I have never uttered that sentence aloud or in writing since Samuel’s diagnosis. I have implied it, but I never could bring forth those words from my lips. It’s a treacherous journey through a valley of deep darkness before acceptance settles into the bones and soul.
But, I believe I have made it out of this canyon and to the bottom of a mountain that I will climb throughout my time as Samuel’s mother. A beautiful mountain.
I stumbled, faltered, mourned, worried, and feared all the way across, and to be sure, I was not graceful most of the way.
But, God got me there, and He has given me the tools and people I need in my life to begin the upward scale. I will be steadfast in my climb. I will advocate for my child until the peak is reached. I will see the beauty around me as I travel, and I will continue to love my son so deeply that he will never know a life without.
With this new-found acceptance, I have taken a leap of faith by creating a GoFundMe page to raise funds for Duplication15. This is a rare disorder, and every parent with a child like mine wants to help their child.
I decided to put my energy and passion into helping our children. So, I set a goal for $5000.
Truth be told, I was scared to take that sort of risk- to be vulnerable to others’ scrutiny, perhaps. I have always had such a fear of rejection and concern of what others may or may not think of me as a person. That short-coming is something that I still lean on God for each day. I remind myself that how He sees my heart and actions is what is paramount to journeying through my earthly life.
In 2 days, we have had 5 donations from friends, raising $300 for the Dup15 Alliance and for the conference this summer.
We have had around a dozen shares on others’ pages, and I could not be more grateful. These precious people have taken the time to say, “I care about you, and I see how meaningful this is to you.”
And my heart and eyes are full.
Thank you.
thisblandlife 